Life before diagnosis

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I am married to the beautiful and unbelievably strong, Zoe, and I have 2 kids, Raphael, 22 years old who will plays rugby professionally (hopefully in France soon as frankly it pays more and is better than here!) and Gabriel, 17 who is a computer nerd, complete opposite to his brother and doing computing at college and I have an 86 year old mum, Pam, who had a very rough 2024, 2025 and so far in 2026 herself (it’s like a crappy competition), who I’m looking after, but who still, unbelievably, has the mental ability to deal with me!

In 2025, I did a dry January and did an 8 mile walk every day to get fit, but every day on the walks I had a "dizzy" spell. I put this down to a diet, daily exercise and no booze. Then in February, the spells kept happening, so I decided to do an MRI. I did an MRI private scan, the cheapest I could find in London, just for my own sanity and the NHS couldn’t offer one for 12 months! The following morning I had a phone call from the GP and was ordered to meet them asap. I was told I had a brain tumour, level 2. This was Wednesday. On Friday I went to hospital and after another MRI was told it was level 4, and terminal, game over.... I spent a week in St Peter's hospital, then in March I spent a week in St George's Hospital and had surgery. Unfortunately, they couldn't remove the whole tumour, just 80%, so I was doomed apparently, I have my SR1, hence why I am doing this fundraising, as I have to live longer so I can look after my family who I love more than everything and the time remaining is short and I am determined to fight and extend my life expectancy, so targeting 5+ years post diagnosis. I spent my whole life raising charity funds, volunteering and trying to be just a good person, never expecting the same for me, but here we go!

The initial treatment is Avastin in the UK, every 3 weeks, £690.82 each treatment. The up and coming treatment is CeGaT in Germany. The estimated initial costs are £80,300,00 year 1, plus accommodation, flights, transport and there will be medical extras circa £6000. A total of £107,400.

I’m so in love with my wife and family, they make me feel amazing, and it hurts so much to know that without any income now, my condition will deteriorate, and my life could end very quickly. I have not been able to work since early 2025 as it would impact my benefits. I feel brilliant, but my earning potential is now limited. Only your donations will finance the CeGaT.
 

The funds that my amazing friends, family and complete strangers, have raised so far have enabled me to test different treatment options and are financing the CeGaT, the major one, and we are all so grateful for that, Thank you. But we do need to somehow find a way to pay for these treatments and need your support urgently. Your donations will enable me to keep on going for longer and get the 5+ years my loved ones deserve. Please, donate, encourage others and do look at the whole website and get the story of my life. Thank you again.