
I’m Simon, and I have, hold your breath... Left anterior temporal Glioblastoma, IDH wild type, CNS WHO Grade 4, TERT promoter mutation, MGMT promoter unmethylated. The worst brain tumour and it's terminal. I love the NHS, but until 2030’s at the earliest, they cannot offer anything to extend my life. It's all private and in Germany. However, there are solutions which will get me the 5+ years to be with my family. I cannot do this without your contributions and help. Please, if you can, donate, share, attend our events and come to us with ideas for fundraisers and any help you can offer. We need you. Thank you and explore the website more to learn about me, my family and friends.
If you're curious to learn more about our experience of glioblastoma, you're recently diagnosed and just want to chat or if you have any fundraising ideas then we'd love to hear from you. We love to give as well as receive help where possible. Sharing is caring...
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